References and Resources
Managing Sundown
Pay attention to any patterns in the behaviors. It may help to keep a diary of activities and behaviors during the day and evening in order to determine if the behavior occurs after a specific event or activity. You may have to avoid visitors, children, and certain activities to prevent symptoms, or you may have to restrict certain foods that appear to be causing symptoms.
If your loved one is repeatedly irritable, and none of your efforts work to prevent the episodes, physical discomfort could be the cause. An elderly person who is confused may not verbalize pain or discomfort, but that could very well be the reason for the behavior. Try asking questions of your loved one - preferably those that will elicit “yes” or “no” answers, such as: “Does your stomach hurt?” “Does your head hurt?” A physical examination may be helpful to determine if there is some problem that can be alleviated with medication. If the behavior comes on suddenly and remains consistent for a period of time, a new physical ailment may very well be the culprit. Every minor physical difficulty can contribute to Sundown symptoms, so be sure to see a physician if you suspect a physical problem.
Tell the person what you want him or her to do, not what you don’t want. Positive instructions will be easier to remember. You may also need to be specific in your instructions, just as you would with a small child. As difficult as it can be, remain patient with your Sundown sufferer. Speak slowly, clearly, and calmly. No matter how agitated or angry he or she becomes, it will only make things worse if you match the emotion. Remaining calm will help the episode to pass by faster.
If someone you know exhibits symptoms of confusion or memory loss, see a doctor immediately. Obtaining a proper diagnosis in the early stages of the disease is very important. Some forms of dementia are reversible, and in rare cases, the symptoms are even caused by a reaction to a medication.
The Dangerous Symptom of Wandering
Wandering is a symptom of Sundown Syndrome that can put your loved one in danger. You may have to install a fence with locked gates if you need to give the Sundown sufferer access to the outdoors. Put an identification bracelet on the person’s wrist, and alert the neighborhood about the possibility that your loved one may get lost.
Of course, locks that can’t be opened from the inside are your best bet. This is difficult, as it may cause stress to the Sundowner’s sufferer, but it’s a better solution than the dangers of wandering. It also will offer you a better night’s sleep than warning bells on the doors, which will only awaken you every time your loved one tries to leave.
Just as you wouldn’t leave a small child alone in a car, never leave a person with any type of dementia alone in a car. Confused people can much too easily forget they’re waiting for someone and start the car or wander off.
Note that there is some evidence that wandering at night can be an indication of congestive heart failure. If your loved one begins to wander, your first action should be a cardiologic examination.
People with Sundown Syndrome may lose their ability to understand your need for privacy, especially if they wander. While you work hard to be sensitive to your loved one’s needs, don’t forget your own. If necessary, install locks on your bedroom and bathroom doors. If this proves stressful for the Sundown sufferer, you can try setting a timer to reassure the person that you will return when the timer goes off. This may or may not work, but there’s a good chance it will alleviate the stress by giving a specific time for your return rather than something open-ended and abstract.






{ 4 comments… read them below or add one }
Sheila 11.22.08 at 10:31 am
I am the fulltime caretaker of my 86 year old stroke victim mother. I have found myself reacting badly to her 3:00 P.M. …what I percieve to be, Sundown Syndrome. She talks incessently…asking for things, which I bring her…and then she takes a bite out of it and wants something else. She can’t stand to have me at any other part of the house, like the kitchen to prepare meals, or in the dining room where I work on my art or projects to keep me from going insane. I am going on my fifth year of taking care of her. Although it’s hard to detect because it’s so subtle…she is slowly declining. She no longer can see out of her right eye. She is totally paralyzed on the left side, but is able to talk. She often feels confined and wants “to get the hell out of here.” Now she has several friends she talks to and waves to…and I have no problem with that. It’s the incessent talking, saying the same things over and over again. I was beginning to feel like a puppet on a string for her when my sister, a nurse, suggested it could be something called Sundowner Syndrome. The stroke took out 1/3 of her brain a little over four years ago. I took her out of the carehome environment because of all the mishandling I saw there of, not only my mother, but many other patients. Since them she has been in relatively good shape, physically, and we see the doctor regularily…as well as nurses sent by the agency to take P.T. tests, etc. I do have an aide who comes 14 hours a week which is very helpful. I had read in another article that the syndrome could be attributed to hormonal upheavel due to the time of the day. My mother used to take progesterone before she had the stroke. To my mind none of her meds include a hormone replacement. Do you know if that has been tried and with what success? I would be interested so that I could notify her doctor and see if there is something else I could do to make her more comfortable at this time of day. Thank you for your time. Sheila L. Larsen
admin 11.24.08 at 9:44 am
I have seen mentioned where hormone imbalance can interfere with one’s biological clock. It is certainly worth mentioning to your doctor.
sheril chambers 01.01.09 at 10:51 pm
my husband is beginning to show signs of sundowners, as well. He is nearly 85, and his night anxiety and hostility have increased. Does anyone have any experience with Zyprexia? It was one recommendation…..
Victoria 01.03.09 at 12:03 am
Thank you Shelia for being painfully honest. I am also a fulltime caregiver to my mother-in-law, with dementia of the Alzheimer type and she has recently developed Sundowners Syndrome. Her son and I are the only ones to care for her as he is an only child. We also get feeling like we are going to go crazy sometimes from the icessent talking and repeating the same thing over and over. Nice to know we are not alone. I find little time to do the things I used to enjoy, like sewing, volunteer work, etc. However the one that bothers me the most is not being able to go to Church, if mom refuses to flat out not to get dressed to go. She is so unhappy and angry that she developed this, it’s the saddest thing I believe that can happen to a person. God Bless you and all who face this cahllenge of caring for a loved one who now has Alzheimers and all the other things that come with it.