16 year old diagnosed with Sundowners

[Jeremy]

I am a 16 year old boy. I was diagnosed with Sundowners Syndrome at the age of 9. I've never really understood my condition..or it's severity in this case. But, I'm having issues on how to tell my friends, and those I'm with, that I have a condition like this. Plus, with most of the information I've found states things like Alzheimer disorder and dementia....which gives off the wrong impression to most people. MOST of my life has been a mystery and the only thing that has been constant is this disorder. Somewhere along the lines of my early life I lost all my memories of everything, and everyone. When I was able to start remembering things, I was diagnosed with this disorder. Doctors think it may be linked somehow...I'm wondering if it could be. They say something MAJOR has happened in my life which sparked a part of my brain to lay my memories dormant...which later sparked this disorder? I'm so confused by it. What I'd like is if someone can please let me know more information on this disorder. It's so hard to get by with letting others know about this. Most people research it and get confused, much like me.

I'd appreciate it.
Thank you.

[Lori]

That rough, but don't feel alone. I lost some memory from cronic fatigue syndrome that I got at the age of 30. All of a sudden, forgot peoples names and faces,couldn't remember multiplication and division, algebra, couldn't read(I love to read). It is supposed to be from stressing out the immune system and still 20 years later, I don't have a clue why or how. Some things are back - I can read again and do math slowly. It took time, and I get tired easy. I burn out easy.  More needs to be studied on the brain so we can live more normal lives. My grandma used to say "you don't miss what you don't have". But life was real different before.