Comments on: Symptoms

By: jackie

jackie — Mon, 14 May 2012 22:38:33 +0000

my dad was just 64 on thursday im worried sick abt this confusion it seems to be when he goes into hospital he gets this he has been going in and out for 4yr now,but everytime he goes in it gets worse,he was always a hard working man who enjoyed a drink after work,but in the last 4yr he hasnt worked had to take retirement due to his health,i go up every ngt to see him and he dosnt know where he is he tells me he been here and there all over working and been at pub etc,the other week he didnt even know me which was quiet hard but thats past for time being,hospital just mentioned this illness to me tngt its been realy intresting reading your stories i just hope my gets the help and diagnosis he needs…thank you for sharing your stories with me x

By: reena

reena — Sat, 05 May 2012 02:02:44 +0000

God bless each and everyone of you. May God be with you all and your loved ones. My great grandmother and I mean that literally! She passed april 18 th 2012. She passed at home on hospice. She had been home from a rehabilitation center for less then a month. She was there because she had broken her shin. At that time she had been staying at my mothers for almost a year! She before he moved in with my mom she was alone at her own home. Due to her having dementia, she easing the same and couldint do the same things as before. You guys I really Iam having a hard time. Sh has been a mother figure to me my whole life. I will be 27 years old. Before my great grandmother who has just had a birthday mar h 5 th, was 87 years old at the time of her passing. Before my granny went to the hospital for her leg. We knew she easing the due to dementia, but I believe when she was in the hospital for her leg she got so heavily sedated she easing eating.. or easing thinking to. I knew its apart of dementia buut it all happened so fast… I didn’t mention she had gain green on her left foot. Her toes except for two, and the top of her foot. I know god has full control over this happening. He really gave me peace during this strenuous time. I really could be taking this terribly. Wrong!!! I also know things. Oils have really been bad. That’s how I know god was and is this all the way because I was able to write her eulogy, dress and do her make up. The night she passed it was around 3:30/4pm. She was on hospice so she was at home. We wanted the family to / be able to spend those those last intimate moments with her. The funeral directors/ coroner came to take my granny @ 10pm. We I didn’t leave to 3am. You know a women had to come and prenounce my sweet great granny dead. It was a m moment in time that stood still!! For me. That same women gave us the opportunity to wash her a nice (wipe down). Motioned her down, comes an brushed her hair. I cut three lock from the middle of her hair. I gavetf one to two of my sisters, kept one for myself. Although it hurted me, she didont know what was going on! I believd had her spirit mind and body forever… there are alit if typos. Iam on a touch screen its antic up.. thank you guys I really needed to get that off me heart.

By: Rick

Rick — Wed, 25 Apr 2012 22:14:57 +0000

I think I’ve had a milder form. Try soothing herbal teas. But I usaully opt for drug zyprexa. Sundowning I usaully have is wandering(less) now and confusion. I take Aromas and zyprexa it usaully does the trick. I also walk in the 24 gym nearby.

By: Carra Lynne

Carra Lynne — Sun, 22 Apr 2012 06:49:17 +0000

My mother just turned 55 and she’s already showing signs of this… should I be worried?

By: terry g

terry g — Thu, 12 Apr 2012 20:18:48 +0000

My siblings and I are dealing with many of the symptoms I have been reading about here. My Mother is 82 and in early December we found that her forgetfulness was accelerating. She has had mild dementia for a few years. When my Dad was living he covered a lot for her, so we are still learning about a lot of this. She has had a couple of UTI’s which are devastating to her. The anxiety and dementia become paranoia and fear. She does not eat as she should and staying hydrated is pretty much impossible. She refuses to drink and eats a few bites of anything. She over indulges in M&M’s and other sweets, but still not enough to nourish her.
A couple of weeks ago she had to have surgery for a large abdominal hernia. The hour surgery became more than 3 hours under anesthesia and her personality has still not returned. Before the surgery we were taking turns staying with my mother in her home, but it was becoming increasingly exhausting and stressful for everyone to be in and out there. My sister would have moved in but could not bring her dogs with her to my mother’s community. No dogs allowed. I also have dogs and could not bring them with me. I live the farthest, about an hour away. I would leave on Thursday morning and not return home until Friday afternoon sometimes and be back and forth in between for doctor appointments etc. My aunts were on the “schedule” for care as well as caregivers in between.
After surgery she went to a well respected rehab but regretfully the care was poor. We took her home to my sister’s house where she still is, but the symptoms listed above seem to be happening every day.
Mom does okay through the day. She misses her house but sometimes seems to understand that she needs to be safe with my sister now. However, after supper, she begins to deteriorate. Trying to coax her to stay up longer has been unsuccessful. She insists on going to bed by around 9 each night. What follows is a nightmare for my sister who is the primary caregiver. Mom calls out, wails and cries, mumbles and talks for hours. She was given Oxycontin for pain after the surgery. We are hoping to wean her from this med as soon as possible to see if her symptoms improve. She uses melatonin, xanex, namenda and B12. We plan to up the B12 as that is safe to do. A sleep aid would help, but over the counter sleep aids basically have the active ingredient for benadryl in them and because Mom refuses to drink more and eat a little better, even if she sleeps, she wakes up shaking and anxious in the mornings. It is devastating to bear witness to the loss of quality of life in my mother. My mother was a strong woman. She raised us with stern, love and respect. I miss the woman she was and hope that I will carry and pass on the memories of her extraordinary life.

By: carolyn byrge

carolyn byrge — Fri, 30 Mar 2012 00:29:29 +0000

my mother-in-law is 89 she will be 90 in August , she is in the nurseing home not because of this but simply because her daughter became bedfast and she could not take care of herself, and they have lived together all her life, daughter never married very big now over 500 lbs, to make a long story short a couple weeks ago my mother in law started at night said they were kids in her room she wouldnt stay in the bed and had fallen a couple weeks before and cracked her wrist so to be safe we had a bed alarm put on her, we are afraid if she falls again that she may break a hip as she has old aruther real bad, i had never heard of this until a cousin which is her neice & a nurse told me to look this up all the symptoms i have read is just what she is doing, she has a memeory that is better than mine and this is the first signs she has had , they have her on zyprexa an only for a couple days but it is taking a toil on me i have health problems and she is in another county 27mile away i feel bad because i cant go to see her & feel bad because she wont come home with me i have never delt with anything like this so i am really stressed. any suggestions you ca give would be appreciated Carolyn

By: KIM

KIM — Tue, 06 Mar 2012 16:00:30 +0000

I CAN SURE FEEL YOUR PAIN. MY 76 YEAR OLD MOTHER IS HAVING SUNDOWNERS SYNDROME ALL OF A SUDDEN ALSO. SHE’S ALWAYS BEEN THE KINDEST, GENTLEST HUMAN BEING I’VE EVER KNOWN. TO SEE HER SO ANXIOUS AND PARANOID AND CONFUSED IS KILLING ME BECAUSE SHE DOESN’T DESERVE THIS. YOU DON’T WANT YOUR GRANDMOTHER TO BE YELLING AND DISCONTENTED. I’M HAVING TO MAKE THAT DECISION FOR MY MOM NOW. TO LET HER BE AWARE OF SOME THINGS AROUND HER OR HAVE HER SLEEP-INDUCED. AS MUCH AS I WANT MY MOTHER TO BE LIKE SHE WAS …SHE’S JUST NOT. IT’S TERRIBLE BUT SHE’S NOT THE SAME SWEET MOTHER I’VE ALWAYS KNOWN. BUT I REMEMBER WHO SHE WAS AND I WILL DO ANYTHING TO HELP HER. I WOULD RATHER MY MOM SLEEP THAN HAVE HER SO FULL OF ANXIETY. WHAT KIND OF LIVING IS THAT? THE HARDEST LESSON I’VE LEARNED FROM THIS IS THAT NO MATTER HOW MUCH YOU WANT TO FIX THIS… YOU CAN’T. SOME PROBLEMS YOU JUST CAN’T FIX SO YOU MANAGE THEM THE BEST YOU CAN! THAT’S ALL WE CAN DO. DO YOUR BEST ALWAYS AND PRAY TO GOD TO SEND YOU SOME GUIDANCE. GOOD LUCK WITH EVERYTHING:)

By: KIM

KIM — Tue, 06 Mar 2012 15:07:02 +0000

it is sad. my mother has severe dementia. we’ve always been sooo close and she was always the kindest, purest, sweetest human being i’ve ever known. now she is forgetful, paranoid, anxious, mean, has screaming fits, etc…. she doesn’t let my dad out of her sight and doesn’t trust him to be alone. i’ve learned a really tough lesson in all of this….no matter how much you want to and no matter how hard you try.. sometimes you just cannot fix the problem before you. i would do anything on this earth for my mom and to see her suffer like this kills me. it makes you feel so helpless. but to know that you’re doing your very best….that’s all you can do. lift it up and pray for god to speak to you and guide you!

By: KIM

KIM — Mon, 05 Mar 2012 20:48:04 +0000

the same thing happenend to my 75 year old mother. i was told it was from the anesthesia which turned out to be true. it took her brain 1-2 weeks to clear but she did recover completely from it. it might also be from the medicine they’re giving her. good luck!

By: KIM OROPEZA

KIM OROPEZA — Mon, 05 Mar 2012 20:38:28 +0000

hello! i just read your comment about your mother and how namenda has helped her. what other medcines does she take? my mom has had depression her whole life. she’s a young 76. she was doing pretty good but started having paranoia, mood swings with fits of crying, so anxious, etc…. she was put on seroquel 250mg and for one week it was like my old mother came back. but after that all of the above symptoms came on and it seems to get a little worse each day. i was told today that she has severe dementia. he increased her seroquel…which i think makes her worse…to try to sedate her so we can keep her at home. she also takes effexor 75mg 3 times a day. i will never put my mom in a nursing home as she is the greatest mother in the world and my best friend. i guess i’m trying to find out if your mom takes anything else with the namenda.. sorry for writing so much. i’m just trying to accept her condition and feel so sad for her.